VHL Patient Vignettes: Personal stories, thoughts, and tips submitted by people dealing with the diagnosis of von Hippel-Lindau
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This compilation of vignettes is designed to help people newly diagnosed with von Hippel-Lindau (VHL) and their loved ones understand what they can expect. Realizing that there are so many different perspectives, we chose a format of vignettes by collating stories, recommendations, and tips from VHL patients and their families. Life with any rare genetic condition is not without its challenges, but the messages of the contributors are fairly universal:...
Format:Paperback
Language:English
ISBN:0692364196
ISBN13:9780692364192
Release Date:February 2015
Publisher:Vhl Alliance
Length:36 Pages
Weight:0.12 lbs.
Dimensions:0.1" x 5.5" x 8.5"
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