I cannot say enough about this book. After being diagnosed I felt completely terrified and powerless. This book walks you through things you can do to ensure you receive the best treatment possible. Full of great facts about scleroderma that my doctor either didn't know or just didn't tell me. Really stresses the fact that you must be your own advocate and that is a great impetus to get out of bed and do everything you can...
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I purchased this for my niece who was just diagnosed with scleroderma and her medical team were not educating her as to the long term affects and prognosis associated with this disease. After reading the book, she was able to quiz her physicians on those points she needed clarified and has been very satisfied with this book's comprehensive overview for the newly diagnosed scleroderma patient. Highly recommend this book.
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This is a wonderful book! As a newly diagnosed patient, I have found this book to be the best book I have read on scleroderma. Not only is it the most comprehensive, but it is extremely well organized and easy to read. The information and guidance the author provides is both practical and uplifting. I was so impressed with this book, I even bought a copy for my doctor! I highly recommend this book for anyone with scleroderma,...
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This book is spectacular! It is filled with lots of helpful information to help get you through this disease. The bottom line is: If you are diagnosed with scleroderma, this book is a must have.
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This book was extremely helpful in my quest to better understand what someone very close to me is experiencing. I now have the knowledge and the understanding to help my friend cope with her disease.
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