Children with Spina Bifida: A Parents' Guide

I purchased this book when my daughter was prenatally diagnosed with Spina Bifida. Since she's been born I have purchased more copies for family members. This book is an excellent resource for parents and loved ones. It teaches about the condition and related concerns in an easy to understand manner. This is by far the best book I have found on Spina Bifida. I would HIGHLY recommend this book to anyone who is expecting/has a child with Spina Bifida. I would also recommend it for family members and caregivers of children with Spina Bifida.

This is one of the two books we ordered when we found out that our baby would be born with sb. We have read lots of books since then and still think this is the best. It is very comprehensive, presents the information well, and I have referred to it often over the past 8 months. We ended up purchasing several copies to give to our family members so they would understand what is going on with our son.

I am the nurse practitioner in a spina bifida clinic. I give this book out to all new parents of children with spina bifida. Many of them tell me that they refer to this book often.

Great help as new parents of a child with SB. Easy to read and well organized.

Children With Spina Bifida: A Parent's Guide offers parents and family members the background, guidance, and supported needed to make proactive, informed decisions regarding a child's complex medical needs and other important considerations. Provided is a complete and compassionate overview of the symptoms of spina bifida; prenatal diagnosis; neurosurgery; bowel management; physical therapy, braces, and casts; nurturing an emotionally healthy child; education; causes of spina bifida; working through grief; urological concerns; orthopedic concerns; childhood development; parenting issues; legal rights and insurance. Of special interest is a chapter on adults with spina bifida written by a physician with spina bifida; and a chapter by a by a young woman with spina bifida who writes about her journey toward independence. Children With Spina Bifida: A Parent's Guide is "must" reading for all parents and family members with a child or loved one afflicted by spina bifida.